Useful links

Here we have listed one or two other organisations that you might find helpful. We have included details of how to contact the organisations along with e-mail and web sites where we know they exist.

SCOTTISH CONGENITAL CARDIAC NETWORK

www.sccn.org.uk

CHILDREN'S HEART FEDERATION (CHF)
Level One
2-4 Great Eastern St
London
EC2A 3NW
Helpline Tel: 0808 808 5000
Office Tel: 020 7422 0630  (9am-5pm Mon to Fri)
Fax:  020 7247 2087
E-mail: chf@dircon.co.uk
www.chfed.org.uk

CHILDREN'S HEART ASSOCIATION
23 Hesketh Drive
Heswall
Wirral
CH60 5SP
Tel: 01706 221988
www.heartchild.info

THE SOMERVILLE FOUNDATION (Formerly GUCH)
75 Tuddenham Avenue
Ipswich
Suffolk
IP4 2HG
Tel: 01473 252007
Freephone Helpline 0800 854 759
www.thesf.org.uk

THE BRITISH HEART FOUNDATION/Young People
14 Fitzhardinge Street
London
W1H 6DH
Tel: 020 7935 018
Info: 08450 708070
www.bhf.org.uk/heart-health/children-and-young-people

CARDIOMYOPATHY ASSOCIATION
40 The Metro Centre
Tolpits Lane
Watford
Herts
WD1 8SB
Tel: 0800 0181024
www.cardiomyopathy.org

HEART TRANSPLANT FAMILIES TOGETHER
36 Guildford Road
Worthing
West Sussex
BN14 7LL
Tel: 01903 606826
www.htft.org.uk

LITTLE HEARTS MATTER (Single Ventricle Heart Condition Charity)
75 Harborne Road
4th Floor
Edgbaston
Birmingham
B15 3BU  Tel: 0121 455 898

 https://www.lhm.org.uk/

NUTRITIONIST RESOURCE
Coliseum
Riverside Way
Camberley
Surrey
GU15 3YL
Tel: 0844 8030 244
www.nutritionist-resource.org.uk

FAMILIAL ARRHYTHMIAS NETWORK SCOTLAND
Centre For Managed Clinical Networks
King's Cross Hospital
Clepington Road
Dundee, DD3 8EA
Tel: 01382 835185
www.fans.scot.nhs.uk/

COUNSELLING SERVICE

Web: www.counselling-directory.org.uk
tele: 01276 301235

The ZAC SCOTT Braveheart Foundation

The Foundation aims to provide help and grant small wishes of children and young people with a heart disorder who are on the cardiac surgical waiting list at Yorkhill Sick Children's Hospital. For more information visit   http://www.zakscottbraveheartfoundation.org.uk

Over The Wall Children's Charity

Over The Wall is a national Children's Charity founded in 1999. Their purpose is to create fun opportunities for children and their families to reach beyond serious illness and discover fun, confidence and a new world of possibilities, always free of charge. They do this by providing residential activity camps which last 3-6 days and are intentionally designed to create positive, life changing experiences. If you are interested please follow the link. www.otw.org.uk and email susanne@otw.org.uk  if you have any questions.

Do you need Wrap Pyjama Fairies to make pyjamas for your child?

If your Heart Child has had, or is going to have, surgery and you want to be sure they have the most comfortable pyjamas with no buttons then please take a look at: www.wrappyjamafairies.co.uk 

WHAT WHY CHILDREN IN HOSPITAL

When a child needs to have a procedure in hospital this can be a very stressful and scary time for them. As a parent you worry about what is wrong with your child and if your child is going to be ok. Understanding what hospital procedures do and explaining them to your child is not easy. Your child might feel anxious when the nurse needs to use a needle to take a blood sample. You might worry when your child is asked to go into an MRI machine or have a general anaesthetic. The WWCIH charity makes video clips suitable for children to help children and parents prepare for hospital and answer some of their questions starting with What? and Why? : www.whatwhychildreninhospital.org.uk

CHILD HEART SURGERY INFORMATION

We delighted to let you know about an innovative new website launched this week. It's designed to help parents and families interpret the statistics about survival after children's heart surgery that are published annually by the national audit body.

http://childrensheartsurgery.info/home